Lowe Syndrome More Condition_symptoms How Do I Find Other People With The Same Syndrome Is Myself?

How do i find other people with the same syndrome is myself? - lowe syndrome more condition_symptoms

Hello. I have a very rare syndrome called "syndrome of Lowe's"
I doubt if anyone has heard of you, but I wonder is there a place online where you can find people with the syndrome of Lowe? I love talking to people who have. His other interests for me to find people, cos its so rare that only happens with children, this syndrome.